S3.The DS-Connect® Registry and the INCLUDE Collaboration for Down Syndrome Progress (CDP): Two Transformative Tools to Accelerate Participant-Centered Research
Tracks
Room 3
| Wednesday, June 17, 2026 |
| 11:00 - 13:00 |
| Room 3 |
Speaker
Ms. Linda Garcia
Nih Include Project (comms & Outreach)
Chair
Biography
Melissa Parisi
Chair
Biography
Dr. Angela Rachubinski
Assistant Research Professor
Linda Crnic Institute for Down Syndrome at the University of Colorado Anschutz
Title to be determined
Biography
Dr. Rachubinski is an Assistant Research Professor at the Linda Crnic Institute for Down Syndrome, where she leads the Clinical and Translational Science Program. Dr. Rachubinski is passionate about advancing Down syndrome research and making clinical trial opportunities accessible to all.
Dr. Esbensen Anna
Professor Of Pediatrics
Cincinnati Children's Hospital
Title to be determined
Biography
Anna Esbensen, PhD, is the Sonya Oppenheimer Endowed Chair and a Professor of Pediatrics at the University of Cincinnati College of Medicine in the Division of Developmental and Behavioral Pediatrics at Cincinnati Children’s Hospital Medical Center. She studies the lifespan development of individuals with Down syndrome and provides clinical services to families of children with Down syndrome through the Jane and Richard Thomas Center for Down Syndrome. She also serves as the Research Director for the Thomas Center and the Division of Developmental and Behavioral Pediatrics.
Tracie Rosser
CDP overview
Biography
Philip Lupo
Researcher perspective engaged in CDP
Biography
