Header image

S3.The DS-Connect® Registry and the INCLUDE Collaboration for Down Syndrome Progress (CDP): Two Transformative Tools to Accelerate Participant-Centered Research

Tracks
Room 3
Wednesday, June 17, 2026
11:00 - 13:00
Room 3

Speaker

Ms. Linda Garcia
Nih Include Project (comms & Outreach)

Chair

Biography

Melissa Parisi

Chair

Biography

Agenda Item Image
Dr. Angela Rachubinski
Assistant Research Professor
Linda Crnic Institute for Down Syndrome at the University of Colorado Anschutz

Title to be determined

Biography

Dr. Rachubinski is an Assistant Research Professor at the Linda Crnic Institute for Down Syndrome, where she leads the Clinical and Translational Science Program. Dr. Rachubinski is passionate about advancing Down syndrome research and making clinical trial opportunities accessible to all.
Agenda Item Image
Dr. Esbensen Anna
Professor Of Pediatrics
Cincinnati Children's Hospital

Title to be determined

Biography

Anna Esbensen, PhD, is the Sonya Oppenheimer Endowed Chair and a Professor of Pediatrics at the University of Cincinnati College of Medicine in the Division of Developmental and Behavioral Pediatrics at Cincinnati Children’s Hospital Medical Center. She studies the lifespan development of individuals with Down syndrome and provides clinical services to families of children with Down syndrome through the Jane and Richard Thomas Center for Down Syndrome. She also serves as the Research Director for the Thomas Center and the Division of Developmental and Behavioral Pediatrics.
Tracie Rosser

CDP overview

Biography

Philip Lupo

Researcher perspective engaged in CDP

Biography

loading