S3.The DS-Connect® Registry and the INCLUDE Collaboration for Down Syndrome Progress (CDP): Two Transformative Tools to Accelerate Participant-Centered Research
Tracks
Room 3 | Crystal B/C
| Wednesday, June 17, 2026 |
| 11:00 - 13:00 |
| Room 3 | Crystal B/C |
Speaker
Dr. Melissa Parisi
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Introduction
11:00 - 11:10
Dr. Angela Rachubinski
Assistant Research Professor
Linda Crnic Institute for Down Syndrome at the University of Colorado Anschutz
DS-Connect overview
11:10 - 11:30
Dr. Anna Esbensen
Professor Of Pediatrics
Cincinnati Children's Hospital
Researcher perspective applying DS-Connect in practice
11:30 - 11:50
Prof. Rosser Tracie
Assistant Professor
Emory University
INCLUDE Collaboration for Down Syndrome Progress (CDP) overview
11:50 - 12:10
Dr. Philip Lupo
Professor
Emory University
Researcher perspective engaged in CDP
12:10 - 12:30
Dr. Melissa Parisi
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Panel Discussion Q&A
12:30 - 13:00
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